Osteopetrosis

Osteopetrosis is a rare congenital disorder (present at birth) in which the bones become overly dense. This results from an imbalance between the formation of bone and the breakdown of the bone. There are several types of osteopetrosis of varying severity. Symptoms can include fractures, frequent infections, blindness, deafness, and strokes.

Osteopetrosis is also known as Albers-Schonberg Disease, Generalized Congenital Osteosclerosis, Ivory Bones, Marble Bones, Osteosclerosis Fragilis Generalisata




ANNOUNCEMENT - SAVE THE DATE

Patient Meeting at the First Osteopetrosis Symposium Sunday October 20, 2013 8:00am to 4:30pm
The Inn at Penn
St. Marks Room
3600 Sansom Street Philadelphia PA 19104
(215) 222-0200

Agenda

A block of rooms is being held at the Inn at Penn at a special rate of $259.00 per night. Please mention the Osteopetrosis Symposium when making reservations.� Upon request, a travel grant of $100.00 is being offered for families that require overnight accommodations.� Please contact the Mason Shaffer Foundation by August 10, 2013 to request this grant.� This travel grant, sponsored by Vidara Therapeutics, is limited in availability so please respond as soon as possible.

This meeting is supported through a donation by Vidara Therapeutics.


To RSVP : email us regarding the Patient Meeting, Sunday October 20, 2013

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Last edit:pwb [partial] 8/4/2013